How can
The MYT1L Project Help?

At The MYT1L Project Foundation, we're building a community where families affected by MYT1L differences can connect and find support. Our aim is to provide resources, build connections, and advance research. We build these connections through our social media forums, our regular virtual meetups and in-person researcher/family events, where we partner with the scientific community to share our stories, increase our understanding of this rare syndrome, and contribute to future research. The greater our community is, the more resources we can focus to support research into personalized medical or gene therapies for people with MYTIL difference to improve lives.

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Funding and Promoting ASO Research

• Learn about the latest scientific advances and ongoing research projects aimed at understanding and treating MYT1L Syndrome.

• Your involvement and donations help us drive progress toward evidence-based therapies and improved quality of life for those affected by MYT1L, as well as the broader field of rare disease treatment.

Connecting Families

• Join a community of parents and caregivers who understand what you’re going through.

• Participate in our regular virtual meetups, social media groups, and in-person events to share experiences, ask questions, and find support.​​

 

Providing Resources

• Access up-to-date information about MYT1L Neurodevelopmental Syndrome, including medical insights, recommended therapies, and expert advice.

• Browse our growing library of articles, guides, and videos tailored to help families navigate healthcare, education, and everyday challenges.​​

 

Hosting Annual Conferences

Attend our annual scientific and family conference,

where researchers, clinicians, and families gather.

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