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How is MYT1L Neurodevelopmental Syndrome Treated?

There is no cure for MYTIL Syndrome.

There is currently no specific medication or treatment that can "cure" MYT1L Syndrome. The MYTIL Project aims to change that by supporting scientific research toward a specific medical or gene-based therapy.

 

We're hopeful that a cure—or at least a highly effective treatment—could be found for MYT1L-related syndromes through the ongoing efforts of research teams.

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In the meantime, several existing therapies have been helpful for children with MNS and their families, including physical therapy, occupational therapy, speech therapy and hippotherapy. It is ideal to begin these therapies as early in life as possible, and many of them are funded in the United States through early intervention programs managed and funded by individual states.​​​

Child with MYT1L syndrome participating in a hippotherapy session, riding a horse for therapeutic support and development
Infant with MYT1L syndrome sitting on a therapy ball during a physical therapy session to improve strength and balance
Young girl with MYT1L syndrome bonding with a therapy horse before a hippotherapy session.

Children with autistic behaviors may benefit from Applied Behavioral Analysis, and ADHD can be managed by behavioral therapies and medications. Early intervention programs can help transition children to public schools, including special preschools between the ages of 3 and 5, where they may receive special education services through an Individualized Education Plan (IEP). After traditional schooling, some children may be ready for modified college-based programs, while others may benefit from life skills training. Our children are each unique and have unique strengths and needs.

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​Every child with MYT1L Syndrome is unique, and their journey may involve a variety of therapies tailored to their individual needs. Early intervention can play a crucial role in supporting development and improving quality of life.​​

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