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Our Facebook Community

The Original 2p25 / MYT1L Family Community  (a private families only Facebook page) is an international community of families impacted by chromosome 2p25 differences of all kinds, usually including the MYT1L gene. Members come to share both challenges and triumphs, learn from other families, and find support from those who have travelled the same rare journey. In this group, you will find people of all ages and from all corners of the world impacted by MYT1L syndrome. The chart below shows the geographic distribution of Facebook family pages as of February 2025. Our group welcomes new families every week.

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Pie chart illustrating the geographical distribution of families in the MYT1L Facebook community
Group photo of MYT1L families from France, England, and the U.S. at the first-ever MYT1L Family Day in Rouen, France

Our MYT1L Facebook page has helped connect families worldwide, fostering a strong and supportive MYT1L community. Pictured here are families from France, England, and the U.S., gathering after meeting at the first-ever MYT1L Day in Rouen, France, in November 2022.

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